Wednesday, July 23, 2014

Scan Results and Charlie Parker

Hello dear friends and family,

As you may have heard, the results of the July 18 scan were mixed-- no visible tumor in the cerebellum but swelling in the frontal lobe (according to Dr. Breneman).  While we are of course happy that the radiation seemed to be effective in eliminating the tumors, we are facing the reality that Mom's condition is declining.  She is no longer able to walk or talk much and even eating has become a bit of a struggle.

At the appointment Dr. Breneman suggested that it might be a good time to contact hospice.  Yesterday, we met with two wonderful people, Tammy Eigel and Doug Schanding, both fellow Prince of Peace goers, to complete the admit process for hospice.  It was an emotional meeting; Tammy's daughter was a student of Ms. Rosie's in preschool and the two of them were kindred spirits. "Nettie loved bugs," Tammy said.  That pretty much cemented the bond.  But the discussions were fruitful and ultimately, we decided that it would be best not to seek further treatment at this time.  Of course, that can change, as both Tammy and Doug assured us, but for now, a little peace is in order.

The visiting nurses will be in today to do their first check-in.  A wheelchair has been ordered.  Dad expects to check-in with Dr. Breneman this afternoon with a few questions and to hear the results of the tumor board meeting.  So I will keep you posted as developments unfold.

To close, I will share another bit from the quote wall.  Charlie Parker's words were written in Mom's beautiful print: "Music is your experience, your thoughts, your wisdom.  If you don't live it, it won't come out of your horn."  She has been singing along lately as we sing.  Yesterday, the Chestnuts were "serenading" her with our regular Tuesday night practice.  She looked up and smiled for a moment.  She seemed to enjoy the personal concert, and I saw her fingers moving with the music.  I think she was dancing.

Dance on,
jk

2 comments:

  1. Wishing peace, love and healing to you and your beautiful family. We are always here for you.

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  2. Ms. Rosie is such a special woman to so many people. Our son, Devin, adored her as his preschool teacher. We send her and your family much love.

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